Wednesday, December 30, 2009

Peg sails through Port Yankout...

...I didn't have the stomach for it. Okay, enough with the bad jokes already-- Monday Peg had her abdominal chemo port removed. Yay! We ended up spending the entire day at the hospital for what's a fairly minor procedure, but it was nice to be back at Mercy for something expected and uncomplicated. Peg's a wee bit sore but glad to have one less reminder of our crazy summer.

Last night we spotted a coyote on the back deck sniffing around the sliding door to our bedroom. First sighting on our property in the 20 years we've lived here. He's joined the pantheon of other critters that have paid us a visit-- the possum we found slurping up the grease under our old grill; the raccoon family that showed up at our side door; the psychotic grey squirrel that threw itself repeatedly at our back door; and our neighbor's enormously pudgy cat, who amuses us by spazzing out on our old deck. The boards are a little rough, and the old thing rolls around repeatedly on them to scratch his own back.

I'm sure we amuse our neighbors as well ;-)

Saturday, December 26, 2009

More Zoë Christmas fun

Peg and I have had a running joke for years that the longer we're married, we're one year closer to wearing matching track suits. You know, old couples wearing matching sweat pants and tops, cruising the mall... so our daughter decided to make an "old parents" ornament. We laughed really hard when we opened her gift.

Also for your enjoyment... the running of the bulls at Pamplona--uh, the running of the child down the hall while decorating the tree.

Tonight we'll play some Scrabble and try some exercises from the book, "Drawing on the right side of the brain." If we get too rowdy, I hope nobody calls the cops.

Friday, December 25, 2009

This year's Christmas is "in tents"





When we go camping, Zoë bails on the cabover camper and pitches a tent out back. She's been stuck with our six-man tent, so for Christmas we gave her a two-man REI tent... that she wants to sleep in tonight in our back yard. It'll get down to the low 30's, and she's got a good mummy bag, so she'll be all snuggly.

Last night Peg's sister Jeanette and her husband, Greg, had us over for a great vegetarian Christmas Eve dinner. Our nephew Jon's girlfriend, Maki, played her sitar for us after dinner and invited us to try it. I've got a serious jones for the thing... I suspect there's a sitar in my future. Far more interesting and intriguing than the bass guitar I played briefly (and badly) a few years ago.

The hallway photo shows a family tradition... before we string the lights on the tree, we run them all the way down the hall into Zoë's room.

Best Christmas present of all, and it almost goes without saying, is having Peg with us and healthy. She doesn't have eyebrows or any other flavor of hair, but is absolutely full of piss and vinegar. As I write this, she and Zoë are laughing and playing "Hearts" on our bed. Best Christmas "music" ever.

Sunday, December 20, 2009

The holidays: medical and merriment



Medical

Peg gets her abdominal port yanked out on the 28th (that's the chemo port that went straight into her belly-- the one near her collarbone worked so much better it was only used once, in July). It's a wee little gizmo like a wine cork, just under the skin. The procedure is in the hospital, but they'll just do a "Whoa, where am I... and who am I" light anesthetic and she'll be out of la-la land in a half an hour.

Still looking for hair to sprout. A watched pot never boils.

Merriment

Now for the merriment: last night we saw the Sacramento Master Singers perform their annual Christmas show in a grand, old Catholic church downtown, something we always really enjoy. This year they also featured Mary Youngblood (center of the circle), a two-time Grammy winner and wonderful native american flutist. If you get a chance to hear her, even on a CD, it will make your hair stand up on end. Same for the Master Singers... they hit a crescendo while singing "hallelujah" that had me having a near out-of-body experience. As a prelude to this wonderful concert, Zoë and I saw "Avatar" in IMAX 3D. Astonishing. Run, do not walk, to see this movie.

Greg and Jeanette (Peg's sister and her husband) are having a small solstice gathering tomorrow night, and they're hosting us for Christmas Eve dinner; Peg's a lot stronger, but not up to hosting a dinner. Spending New Year's with dear friends the Andre family, who we met 12 years ago through an interesting story I'll tell you sometime and with whom we've had many fine adventures.

And we have yet to score a Christmas tree. I see from Peg's cousin Diane's comment on the last post she has a connection with a guy who has good smelling ones. This old dog's gonna give her a call in the morning.


Wednesday, December 16, 2009

Our winter crop...

...Peggy's hair! So far, nada, but it's about a month out from chemo. Looking forward to the day when she has eyebrows, as opposed to applying them (having said that, she's gotten really good at it).

We planted our winter garden crop last week-- kale, cabbage, onions, beets, broccoli, sweet peas, spinach and salad greens. Everything seems pretty happy and is either growing or failing to croak.
We've only had two freezing nights, and today it was in the low 60's... I'm sure the plants are quite confused as to what season they're supposed to be responding to.

Packed our friend Marge back to Denver on Monday. What a treat to have her out, though the visit was too short. Lotsa schmoozing and reconnecting, Afghan food at the restaurant just up the hill, and more yumminess here at home-- we cooked beef barley soup, orange scones and some indescribable French baked egg thingies she discovered on HGTV.

Zoë and I are headed out sometime this week to snag a Christmas tree. We have a wreath on the front door that I sniff quite often, old dog that I am. Love the smell of fresh pine needles. We're planning on a pretty low-key Christmas and New Year's... quiet and thankful.

Monday, December 7, 2009

Life after chemo

Said farewell to Peg's wonderful oncologist today for three months. We'll check back in again in March... then every three months for five years. After being in medical mode for what seems like forever, this is new territory.

We are thankful to have found Dr. Bobolis through our friend Karen, who also works at Sutter Roseville. Sacramento Magazine surveyed 3,000 local physicians and asked them who they would refer a loved one to... and Kristie was one of just 39 docs chosen by her peers. She's been our rock through the twilight zone that was the second half of 2009.

We're already making plans for Spring Break-- I've got to make sure the camper is still in one piece. It's been waiting patiently behind a rental property owned by Peg's sister Jeanette and her husband, Greg, since last April. Greg's tenant says the tarp is pretty beat up, but the thing is sound and true and hasn't leaked in the seven years we've had it. Take another look at Peg's photo at the top of the blog, hanging out of the back door of the camper last March. We're shooting for an identical shot this March, albeit with considerably less hair.

Looking forward to our friend Marge coming out from Denver to visit this weekend (longtime friend, maid of honor at our wedding). We were hoping to treat her to the summerlike weather we've enjoyed out here until recently, but it looks like cold rain starting Friday. But that's what home and hearth and friends are for... to push the cold away.

Tuesday, December 1, 2009

The circle game


This summer our friends Mary and Estelle came to visit Peg and Estelle brought her guitar, nestled carefully in her little pickup truck. That afternoon we were priveleged to hear angels sing in our living room. This song touched us very deeply. We will never forget looking into our friends' faces as they shared their voices. What a wonderful gift.

Here's a photo our friend Chris took amongst the Gingko trees two days ago and Peg's video "hello" from the blog in June... and sandwiched in between are the wonderful words sung by our dear friends that so gladdened our hearts.

Yesterday a child came out to wonder
Caught a dragonfly inside a jar
Fearful when the sky was full of thunder
And tearful at the falling of a star

And the seasons they go round and round
And the painted ponies go up and down
We're captive on the carousel of time
We can't return we can only look behind
From where we came
And go round and round and round
In the circle game



Wednesday, November 18, 2009

Buh bye, chemo...



Another milestone. Today was Peg's last chemotherapy. Ever.

Between chemo, blood draws and hematocrit/white cell booster shots, we've made the trip up to the Sutter Medical Center over 30 times so far. Twice a week since early July. From the sweltering Summer heat to the falling of Autumn leaves, Peg's either been poked, prodded, injected, infused or whupped upside the head with a chemo stick like clockwork.

To celebrate, she put on Zoë's Mickey Mouse wizard hat as they pulled out the needle and the staff at the infusion center applauded.

Peg says it feels surreal (but exhilarating) to know this is it. Time now to get healthy again-- eat normal, nutritious foods, exercise and ease out of the stress of major surgery and the effects of chemotherapy.

When we came home, the light was just kissing the trees in the front yard and a breeze full with the smell of crisp leaves was kicking up. Great end to a great day.

Tomorrow, and the tomorrows to follow, will be very different than the previous five plus months-- we're no longer on any kind of a treatment cycle. Just life.

As awful as it was, Peg is grateful for chemotherapy. Without it, she would have left us sometime over the summer. It really, really worked... but is she ever glad to move on.


Saturday, November 14, 2009

Peg turned 55 yesterday

She spent the morning meditating. I was in meetings downtown. Last night we ate at a wonderful Afghan restaurant with our dear friends who were visiting from Grass Valley. And indulged in our latest "can't get enough of," "30Rock" on DVD.

Today Peg had a fun lunch and walk with our friend Marilea, who gave her a card with a wonderful poem (author unknown), which I will share with you here:

When you come to the end
of all that you know
you must believe one of two things:
you will find earth upon which to stand
or you will be given wings.

Peg at 55. Life 2.0.

Tuesday, November 3, 2009

Six down, one to go

Peg had enough "oomph" last night to plant some winter flowers with Zoë, as long as she was sitting down. Swapped out the zinnias for pansies and put in red snapdragons around the grass. Can't remember the last time we were able to work out in the garden as a family, and what a beautiful time to do it-- magic hour just before sunset with the amber light hitting the upper canopy of the trees, leaves turning gold.

Our family doc emailed Peg yesterday to tell her the CA-125 marker is now down to 6. The cancer is in remission and her numbers look good, but she's getting knocked down a bit by the chemo. One of the side effects of chemotherapy is neuropathy, which is numbness in her toes and the balls of her feet. She's got a bit of numbness and tingling in her fingertips as well.

Her weight is back up about where she wants it, and we've started to eat a more balanced diet again. But we have fond memories of horking down mass quantities of mashed 'taters, gravy and all the other yummies our friends brought us over the last four months to get her there.

Peg's last chemo, the seventh, is two weeks from tomorrow. Then she'll be monitored closely for a few months, then less frequently. After three or four years with no recurrence, the odds are in her favor that her future is cancer-free. Our friend Jon, who went through this 11 years ago with Non-Hodgkins Lymphoma, says that he looks back on it as a bad dream. We're looking forward to saying that down the road as well. For now, we're enjoying the flowers, and each other.

Saturday, October 24, 2009

Tears of joy falling on the onion rings

Dr. B gave us the official word: Peg's cancer is in remission. She's got two more rounds of chemo, one on Wednesday and one three weeks later... and she's done.

We celebrated by going to Habit, our favorite burger joint. I was hoovering down my cheeseburger and looked up to see my sweet wife, burger halfway to her lips, crying really hard. I started to freak out until she told me she was so happy inside she just couldn't contain herself.

After she had a good long cry I took one of my onion rings and made a little heart shape out of it as a greasy love offering.

Peg's a lot stronger these days. Takes two long walks a day, hardly naps at all. Yesterday she drove herself to get a flu shot and some groceries. It was the four-month anniversary of her surgery... a third of a year. Wow.

Saturday, October 17, 2009

Chemo hat mania

Peg has an assortment of chemo hats to keep her sweet bald head from getting cold... but they're a little too practical. I suggested some alternatives, especially as she gets out more. The conehead, for example, would certainly enliven a trip to the grocery store.

We're keeping a close eye on her CA-125 numbers (the marker for ovarian cancer), and they're still heading in the right direction-- 178 to 33 to 11, and this week, down to 7. Yesterday she had visitors, did two walks and washed the dishes, all with just a 45-minute nap. Next Thursday we visit Dr. B, and may learn then whether Peg has one more round of chemo or two.

Can't believe how fast the Bus of Time is hurtling down the Freeway of Life. I'll try to be better about updating the blog more frequently. It's been awhile!

Peg's eyebrows are starting to thin out. She tried (and quickly abandoned) eyebrow makeup. I told her she could glue on some trimmings from mine, but she didn't think the Andy Rooney thing I've got going on would be a good fit.

Thanks for all your calls and visits. It's a huge help in keeping her spirits up... probably the single most important and helpful thing you can do for the Pegster.

Monday, October 5, 2009

Inside the pinball machine

This morning Peg felt good enough to help put sheets on the bed, crawl around hooking up the electric blanket, and go for coffee with our friend Mary. She worked in a visit with Suzanne, her office partner. We took a brief walk before dinner.

And wham, it all caught up with her.

She said after dinner her legs felt like cement. She's watching "Mad Men" on DVD right now, which is all she has energy for... her short-term memory does short-circuits on and off during the day. She gets weepy and profoundly sad, seemingly out of nowhere, then she's fine a few minutes later.

And yet we laughed really hard today thinking about lines from the movie "Baby Mama," which we saw as a family last night. She loved feeling the breeze and the sun on her clothing on our pre-sunset walk. We both delighted in seeing our daughter being a teenager, skipping through the house and yakking about homework with her friends.

And so it goes inside the pinball machine. Chemo is not a trajectory, as we had thought, where you can predict your "good days." It's all over the map, like some bizarre gizmo with the seven dwarves, three stooges, the four horsemen of the apocalypse and Pee Wee Herman pulling the levers. Surprise!

Thursday, October 1, 2009

Big thumbs up from Dr. B

Just got back from seeing Peg's oncologist, who was delighted at her progress. Peg's up to 128 pounds, still no nausea, and all the numbers are headed in the right direction.

She's starting to feel some of the odd side effects of the chemo, like numbness on the balls of her feet. Mornings are good for her these days... late afternoon, not so much. Her belly bothers her a bit then and she feels kinda lousy.

Dr. B said not to be too concerned about fluctuations in how Peg feels. Part of the gig. She did say, though, that the effects of chemo are cumulative, so as we head toward November there could be some rough days. There's also a possibility of a 7th round of chemo, since the first round in the hospital was abdominal and didn't distribute properly in her abdomen. It was loculated. (Now you have a new scrabble word to try out).

Tonight Peg's going to meet with her women's group for the first time since June. They've met every other Thursday for almost 20 years. She may be too poohed to stay the whole time, but it's a big step for her just to be out. Yay!

Wednesday, September 23, 2009

Good numbers, but still a hard day

Peg's CA-125 markers (indicators of ovarian cancer) are down from a high of 178 to 11.  20 is considered baseline normal.  Three weeks ago they were at 33.  And her blood tests showed her red cell levels are approaching normal, up from being very anemic.

Yesterday was still a hard day for Peg... it really hit her hard that she's not able to wrestle with Zoë, swim with her or be as present as she was before she was diagnosed.  

Saturday, September 19, 2009

Zoë runs for her



Today,  Zoë ran a 5k to raise funds for ovarian cancer research and awareness, along with her friends Stephanie and Colette and about a thousand other folks.  She came in sixth in her age category and number one in our hearts.

Peg needs a lot of encouragement these days.  It's a tough road emotionally on top of the physical symptoms.  She took a short walk today and said her legs felt alternately like cement and rubber.  What weighs on her more is having endless down time without the capacity to fill it with enjoyable or fulfilling activities.  Too spaced out to read a lot, not enough energy to do much besides eat and rest.

She needs your companionship right now.  When a friend comes by the house and spends an hour or two just keeping her company (talking, reading to her, rubbing her feet) she just seems to soar out of whatever funk she was in. This is her life's blood-- the love and support of her community of dear friends, made all the sweeter by being close by.

The best thing you can do for Peg right now is to write to her, call her and visit her. Several friends have expressed some hesitation around "disturbing" or "bothering" Peg.

Please... proceed to disturb and bother.  And we'll load you up with homegrown tomatoes when you leave.

Wednesday, September 16, 2009

And now for something completely different

We all have turkeys in our lives... although in our case, they are actual toms and hens.  They roost in the oaks behind the house, root around the garden, then fly onto the roof and into the front yard every afternoon.

Then they play poker and smoke cigars in the neighbor's yard until he calls the cops.  Actually, I don't know what they do after they leave our yard.  All I know is that they scratch up mass quantities of bark onto the pavestones, which Zoë and I then have to sweep back into the yard. This is nature's way of keeping us busy.

Charming of one of the little beasties to leave a souvenir on the deck just prior to launch...don't blink or you'll miss it.

Four down, two to go

Peg feels pretty good tonight... a little hyper from the steroids, a little itchy from the chemo.  Her red cell count was up enough they didn't give her anything to boost it, and her white cell count was good as well.

She was more apprehensive last night than she'd been for the last round.  No specific reason.  I think there's always a question mark around side effects and fatigue-- no way to know until symptoms appear.  Knock on wood, but she's had no nausea and her appetite is good.  She keeps meticulous track of her calorie intake each day to keep it between 2,600 and 3,000.  I was pretty shocked to learn how calorie-packed some common foods are.  Good for Peg--for the rest of us, not so much!

She thought she had enough oomph to attend "back to school night" at Zoë's high school tonight, but wisely decided against it at the last minute.  Huge campus, almost two thousand students, total chaos and (literally) running from class to class for an hour and a half.  

We've found, even before Peg was diagnosed, that a good philosophy is "one less thing."  Many sighs of relief have accompanied not trying to cram in just one more errand/activity/commitment. To quote Nancy Reagan, "Just say no."  Especially since these days we're looking pretty carefully at Peg's energy reserves and how best to expend them.

Thursday, September 10, 2009

Peg's stronger this week

She took a half-hour walk by herself two days ago, and this morning our friend Katie took her to Target to buy some comfortable pants.  It's the first trip somewhere besides a doctor's appointment since the surgery.

Peg's been getting in, through herculean effort, 2,600+ calories a day-- mostly protein powder packed smoothies.  For some reason, she won't go for an Ultimate Cheeseburger from Jack in the Box (910 easy calories!)  Her appetite is pretty good; the tough part is having to eat every two hours or so to build her weight back up.  She's up to 126 from her lowest weight of 119.  Her walk is stronger and more confident than it was even two weeks ago.

Next Wednesday is Round Four (of six) for chemo.  Her nickname is chemo-sabi– she's the "paleface" from being inside all day and I'm the "red" man from bicycling in sizzling Sacramento.

Dr. B. eyeballed her yesterday and is really pleased at where she's at in her treatment.  They run a CA-125 chem panel after chemo, so we'll know Peg's new numbers about a week from next Monday.  Stay tuned...


Friday, September 4, 2009

No California State Fair for Peggy




It's been our family tradition since Zoë was a year old– the three of us go to the fair and get our family picture taken in one of the funky old-time photo booths that line the midway. Each little photo strip is lovingly tucked into a pocket and makes its way into our annual newsletter.

Tomorrow I'll take Zoë to the fair without Peg... she's just not up to it.  She was tearful about it tonight.  Another thing to give up.  She said having cancer is like being a sock in a clothes dryer; you're lofted up, then slammed down to the bottom, then the cycle starts all over again.  Only you never know when you're headed to the bottom of the dryer.

So this year our family newsletter will have a photo booth picture taken in front of WalMart.  They have half a dozen booths just outside the entrance. No rides there except for the one we're on.

Tuesday, September 1, 2009

Tears of gratitude and celebration

Yesterday our family doc called to say that Peg's CA-125 levels were down to 33.

This is big, and welcome, news.  

CA-125 is a marker for ovarian cancer. When Peg had her surgery on June 23, her levels were at 125.  Just three weeks ago, before the second chemo, they spiked at  178.  

Now they're at 33... below 20 is considered normal.

We're grateful for all your love and support.  You have nourished us with your presence, food, prayers and phone calls.  Things are heading in the right direction!

Sunday, August 30, 2009

More eloquent words than mine

Our brother-in-law Greg (Peg's older sister's husband) dropped by to read to Peg today and brought this article  from the New Yorker.  Black humor got Peg through the grueling regimen of medical school and psychiatric residency, and she thoroughly enjoyed this (as I hope you will as well).  As far as I'm concerned, black humor is mission-critical--- even if you're not dealing with cancer.  Taking things totally seriously is a recipe for disaster, regardless of the situation.

Today was a good day.  Had a delightful visit with Chandra who we've known since our children were in kindergarten, fun shenanigans  with Greg, and I enjoyed a 25 mile bike ride.  Zoë was at a friend's sleepover birthday party last night and on her arrival home at 2pm did a total carpet face-plant/one-hour snooze.

As Yoda famously said, "Do... or do not.  There is no try." 

Here you go:  

"Cancer Becomes Me," by Marjorie Gross

So I'm sitting in the doctor's office, he walks in, just tell me straight out, "I was right - it's ovarian cancer, so I win. Pay up."  And I say, "Oh, no, you're not gonna hold me to that, are you?" And he says, "Hey, a bet's a bet."  You don't know what it's like to leave a doctor's office knowing you've lost a hundred dollars: suddenly everything's changed.

Well, OK, I've exaggerated a little. What really happens is the doctor walks in and gives you the sympathetic head tilt that right away tells you, "Don't buy in bulk." The degree of tilt corresponds directly with the level of bad news. You know, a little tilt: "We've caught it in time"; sixty-degree angle: "Spread to the lymph nodes"; forty-five-degree angle: "Spread to your clothes." In her book about cancer, Betty Rollin wrote, "First, you cry" However, she didn't mention what you do second, which is "Spend, spend, spend." You're sort of freed up, in a weird way. Suddenly, everything has a lifetime guarantee.

So I had a hysterectomy, and they found a tumor that they said was the size of an orange. (See, for women they use the citrus-fruit comparison; for men it's sporting goods: "Oh, it's the size of a softball," or, in England, a cricket ball.) I languished in the hospital for ten days, on a floor where everybody had cancer, so the sympathy playing field was level. You can't say, "Hey, can you keep it down? I just had my operation." You might get, "So what? I'm on my fifth. “Poor thing” doesn’t really come into play much on this floor. My mother, who also had this disease (yeah, I inherited the cancer gene; my older brother got the blue eyes, but I’m not bitter) – anyway, my mother told me that for some women a hospital stay is a welcome relief. You know, to have someone bringing you food, asking how you are, catering to you every vital sign. See, she wound up in a room with five other women, and they would sit around talking on one bed, and the minute the doctor walked in they would jump into their own beds and re-create the “incoming wounded” scene from ‘M*A*S*H*”, insuring that they would not be sent home early.

Which now leads us quixotically but inevitably to chemotherapy. What can I say about chemotherapy that hasn’t already been said, in a million pop songs? I was prepared for the chemo side effects. I had my bald plans all in place. I decided to eschew wigs – all except the rainbow wig. Once in a while, I’d put that on when I didn’t want to be stared at. Luckily, in my life-style (Lesbeterian) you can be bald and still remain sexually attractive. In fact, the word “sexy” has been thrown my way more times this year than ever before. I’ve had dreams where my hair grows back and I’m profoundly disappointed. The bald thing works on other levels as well. The shortened shower time – in and out in three minutes easy. Shampoo-free travel. Plus, I get to annoy my father for the first time in twenty years. He hates to see me flaunting my baldness. I thought I’d lost the power to disgust him, but it was right there under my follicles all along.

The other side effect is that I’ve lost twenty pounds, which has sent my women friends into spasms of jealousy. I think I even heard “Lucky stiff.” I said, “I think I’m closer to being a stiff than lucky!” But it fell on deaf ears. I suppose it’s a testament to the overall self-esteem of my fellow-women that, after hearing all about the operations, the chemo, and the nausea, the only thing that registers is “Wow, twenty pounds!” and “You look fabulous!” It’s a really good weight-loss system for the terminally lazy. I mean, a StairMaster would have been preferable, but mine wound up as a pants tree.

Then, there are my other friends, who are bugging me to go alternative. So now I’m inundated with articles, books and pamphlets on healers, nutritionists, and visualization (which I know doesn’t work because if it did, Uma Thurman would be running around my house naked asking me what I want for breakfast). I was also given a crystal by a friend who was going through a messy divorce. She was given the crystal by a guy who died of AIDS. As far as I was concerned, this crystal had a terrible resume. As far as the healing power of crystals goes, let me just say that I grew up eating dinner under a crystal chandelier every night, and look what came of that: two cancers, a busted marriage and an autistic little brother. There, in the healing power of crystals. Enjoy.

This is not to say I’m completely devoid of spirituality. I mean, when you’re faced with the dark spectre of death you formulate an afterlife theory in a hurry. I decided to go with reincarnation, mixed with some sort of Heaven-like holding area. Then, of course, we could also just turn to dust and that’s it. I come from a family of dust believers. They believe in dust and money: the tangibles. The thing about death that bugs me the most is that I don’t want to get there before all my friends. I don’t even like to be the first one at the restaurant.

The hardest part of this whole thing is that it has completely ruined my loner lifestyle. I’ve never felt the need to have anyone around constantly. I mean, I never wear anything that zips up in the back, and I hate cowboy boots. And now I get ten times as many phone calls – people wanting to come over and see me. When I’m well, I can go months without seeing someone. Whey the rush to see me nauseated? I especially don’t believe in the hospital visit. People come in, you’re lying there, you can’t do anything, and they start talking about their plans for the night.

I hope with all this negative talk I haven’t painted too bleak a picture and therefore discouraged you from getting cancer. I mean, there are some really good things about it. Like:

(1) You automatically get called courageous. The rest of you people have to save somebody from drowning. We just have to wake up.

(2) You are never called rude again. You can cancel appointments left and right, leave boring dinners after ten minutes and still not become a social pariah.

(3) Everyone returns your calls immediately – having cancer is like being Mike Ovitz. And you’re definitely not put on hold for long.

(4) People don’t ask you to help them move.

(5) If you’re really shameless, you never have to wait in line for anything again. Take off the hat and get whisked to the front.

So it hasn’t been all bad. I’ve done things I never would have done before. I even got to go to Europe with a creamy-white pop star. I used to use the word “someday,” but now I figure someday is for people with better gene pools.


Saturday, August 29, 2009

Keep your hands and feet inside the ride at all times

Round three of chemo has been tough so far emotionally for Peg. We weren't prepared for that aspect, naturally focusing on the physical effects, but it's just as important. 

Friends brought us dinner, company and a fun TV show on DVD tonight. Helped turn things around. 

This is apropos of nothing, but a friend shared it with me this morning and I got a good laugh out of it.  It's a quote from Oscar Wilde: "Be yourself.  Everyone else is already taken."

Wednesday, August 26, 2009

Protein Packin' Peggy


Mahalo to our friend Ted in Maui, who steered us away from the "steak in a  can" stuff from Carnation.  Peg's doing much better with smoothies-- yogurt, almond milk, frozen fruit and protein powder from GNC.

When I brought this stuff back from the store, none of us could believe how huge the package is.  Four  one-cup scoops is 720 calories, 13 servings in a container.  (I didn't Photoshop in the crepe myrtle trees behind my truck-- they're in full bloom and we're really enjoying them).

Peg's rounding out her diet with the wonderful food our friends bring by and has a good appetite.  

Today's chemo went well.  Outpatient for this round, and probably the next two. She got a shot to boost her red cell count, which will help her energy level, which is already better than it was a few days ago.

Peg and I were talking in the car on the way back to the house about how much it means to have so many people keeping her in your thoughts and prayers.  We are truly blessed having you in our lives.

Monday, August 24, 2009

Zoë started 9th grade today


Zoë and I spent a fun two hours yesterday at our neighborhood Starbucks with our friends Bruce (who took this photo), Mary, daughter Julie and Eddie, The World's Officially Cutest Dog.  This was the day before our daughters entered high school.  

Unseasonably cool weather for Sacramento, perfect for reflecting on life and enjoying one of its gifts-- a long and rich history with friends of many years.  Mary spotted Peg when she and Zoë were at a neighborhood coffee shop twelve years ago, when our identically aged squids were tiny... introduced herself, and the rest is history.  So glad Peg had a hankerin' for a mocha that particular day.  Can't imagine not knowing these wonderful folks.

Zoë's doing well with braces and doesn't complain.  I'll be honest-- if I had braces, I'd be whining all the time and you'd be plenty tired of hearing about it.

Wednesday is Peg's halfway point for chemo, third of six.  We'll keep you posted.


Sunday, August 23, 2009

Headed in the right direction

Peg was able to handle multiple visitors today and even suggested we do a sunset walk at Lake Natoma, about two miles  from our house.  It was stunning.  NIce delta breeze, just chillaxing (as Zoe would say), watching the geese coming in to roost for the night.

She's definitely a creature of habit these days, by her own admission.  Disruption in the routine we've cobbled together as a family  the last two months stresses her out and drags her down.  No California State Fair this year for the Pegster-- we'll do our traditional family portrait for our New Year's letter at the local WalMart, where they have photo booths just outside the store.

She's  starting to put weight back on, and has a bit more energy, but has a deep and aching desire for this to just be over and done with.  It's a grind for Peg, and for Zoe and I as well. Looking forward  to  mid-October, when the last chemo is done and we're off to who knows what but it's better than this.

As Cap'n Jack Sparrow said at the end of "Pirates of the Caribbean: Curse of the Black Pearl": 

"Bring me that horizon."

Sunday, August 16, 2009

Skinny, sweet and scrappy

Every day is different, but in a very different way than it was before Peg was diagnosed.  I think we often take for granted just how different every day holds the possibility of being.  What is a "normal" day, anyway?  I can barely remember what our lives were like before June 12.

Take for example a "routine day." Routine is a relative term.  Often she'll wake up early, say 5am, and camp out on the living room couch, fall into a deep sleep until 8:00 and be very alert for awhile.  One constant is that if  she overexerts herself, she needs a long rest before she can rally again. Generally, later in the afternoon she's more alert and engaging.  We have dinner early and go for a five or ten minute walk if Peg's up for it. And our family ritual before bed is watching "The Daily Show With Jon Stewart."  That's a "normal" day.

She's thin as a rail, but of course smart as hell and focused like a laser beam on keeping track on her caloric intake. She manages to take  in over 2,100 calories a day in that long climb to get back to her normal weight.

This morning before Zoe woke up we took a walk around the park that's two blocks away from our house.  She had to rest at a picnic table halfway around, and the walk pretty much knocked her down until early afternoon.

She thoroughly enjoys visits from friends.  It's hard for her to focus on reading (or even listening to music or watching TV) for more than a few minutes, but having a good friend drop by for conversation, a hand massage or being read to is an experience she engages in on a whole other level.  Kind of a crap shoot as to how long the visit lasts-- when she's poohed, she's really and thoroughly depleted and hopes you understand when she says, "I really need to stop now and rest."

Her attitude is good, and her weight has stabilized.  We're going to start shifting her from emergency-nutrition processed food--the high-calorie "steak dinner in a can" stuff--to more balanced smoothies less loaded with high fructose corn syrup and the other nasty crap she's put up with to keep her weight from going into freefall.

If anyone has held back on calling Peg because you don't want to be intrusive... please call.  I'm self-employed so I'm usually here to shag calls, and if she's not in a good place to talk, I'll let you know.  But she really appreciates connecting with y'all.  916-965-1950. Just be prepared for a short visit, although if  she has the energy, she can chat for a bit.


 


Wednesday, August 12, 2009

First time in a restaurant in two months

Our friend Mary suggested lunch after taking Peg to her blood draw/analysis... and took her to a great burger place in Granite Bay (Habit).  Not only did Peg have a burger and onion rings, but I was the beneficiary of the four leftover rings.

Here's the straight scoop on onion rings.

If they're crappy, you've gotta eat 'em hot or they'll congeal and turn into inedible goo.  These rings were cool but still incredibly tasty. The mind reels at how good they must have been fresh out of the fryer. Methinks a field trip to Habit is definitely in our future.

Peg's energy is trending in the right direction and her appetite is on the upswing.  We need to work on the exercise part of the program, just managed a short stroll in front of the house tonight.  Living the "box of chocolates" life... you never know what you're going to get.


Tuesday, August 11, 2009

2,100 calories a day

That's 600 more than the average woman takes in.  It's what Peg has to whomp down to climb back up to her normal weight... a long 15 pounds to go.

Thanks for your many entertaining and fun suggestions on how to do what we're all programmed as adults to avoid.  We're trying not to rely too heavily on dairy, which is the go-to food group for weight gain.  I would hoover down fettucine alfredo all day long, but Peg can't handle large quantities of really fatty stuff.  She paces herself, eating every two hours or so and keeping track of her caloric intake.  She's been very conscientious about keeping well hydrated.

Tomorrow the UPS guy will drop off 24 eight ounce cans of the Mother of All Nutritional Supplements: Rambo.  (Okay, they don't call it Rambo.  I'm a marketing guy, and that's the name I picked for it).  Carnation makes a back-room, CIA clearance-required, stand back and shield your eyes version of their liquid instant breakfast drink: 560 calories in one can.  Booyah.  We're hoping this will reverse the trend of Peg dropping about a pound every few days.

Also tomorrow: our friend Mary takes Peg to the oncologist for a blood draw/analysis; Zoë and her Auntie Jeanette head up to the hills to the Yuba River for a day of swim fun; and I head downtown to take publicity photos of Sacramento's mayor, Kevin Johnson, as he records a video at my friend Bill's production studio.

Every day is absolutely and entirely different.  Looking forward to the structure of Zoë being in school and Peg and I getting a firmer handle on the rhythm of cancer recovery.  We've literally had to reinvent our lives in just 58 days, so once in a while I just have to sit on my ass, stare at the garden, and let it roll over me... and let go.

A core belief of Buddhism is that attachment is the root of all suffering. Not just attachment to things, or people, but to expectations.  Of how things "should" go.  Or what "should" happen next.

I don't belong to any particular religion, including Buddhism, but their approach as I understand it has been immensely helpful to me.  Release is a good thing to do a lot of.  

Being mindful.  Breathing deeply. Taking in simple things.

Pretty amazing what 58 days will do.

Saturday, August 8, 2009

A contradiction in weight management


Peg's been dropping abdominal weight, and her fluid bulk is way down.  No more 8-month-pregnant belly. She no longer has to hold her stomach as she walks around and can comfortably lie on her back.

Downside is she's also dropping weight everywhere else. Trying to compensate with Ensure, protein-rich foods, anything she's interested in given her diminished appetite.  Down to 121 pounds from her normal weight of 135-140.  Bony little arms, same sweet face. We don't want her to drop below where she is now... any tips n' tricks, please send our way.

Our girl needs to bulk up, and just to complicate matters... she's no longer that interested in chocolate.

There's a challenge for yah.

A big thanks for all of your prayers, visits, food, Zoë play dates, music CDs, helping around the house, you name it.  We're amazed and overwhelmed at the cornucopia of love and goodwill.

Thursday, August 6, 2009

Busy but fun day today

Closed out the day with a visit from Peg's women's group.  The same seven women have met every other Thursday for the last 20 years.  Tonight Jeanette (Peg's sister), Marlene and Marilea chillaxified (Zoë's term) with our family and enjoyed brownies, conversation and a cool delta breeze.

Outside physical contact is now confined to "air hugs" as we're more conscious of Peg's compromised immune system.  She was strong and alert much of the day today and definitely has regained most of her appetite, though she's backed way off on chocolate.  I thought that chocolate was essential to female well-being, but then again, I'm someone who thinks coffee is one of the four major food groups.

Peg enjoys visitors a lot.  We're striking a balance daily with her need for intellectual stimulation/connection with friends and her need to "chillaxify" and not get too physically overwhelmed.

If you drop by to see Peg, be prepared to leave with a boatload o' veggies.  Especially duh-maters (for those of you not from Nebraska, tomatoes).  The cherry tomatoes are like candy. Strawberries look like a lost cause this season... just a bunch of runners and some squirrel-nibbled itty bitty fruit. 

Wednesday, August 5, 2009

Chemo, round two

Peg will do a four-hour drip (outpatient) this afternoon.  Had a minor freak-out yesterday when Blue Shield was withholding treatment pending approval.  Apparently a twenty-something clerk in a cubicle, in the 20th floor of some nondescript building in San Jose, knows more about a cancer treatment regimen than an oncologist who became a physician before the clerk was born.

Sorry for the sarcasm.  And I'm thankful we actually have insurance.  It's just frustrating and a little scary.

Saturday, August 1, 2009

Can't have a bad hair day...

If you don't have hair. Yesterday Peg decided she was done with being the Johnny Appleseed of hair follicles-- strands scattered over the pillowcase, clumped like a small mammal at the shower drain, carpeting the bathroom floor. So our friend Trish, who did Peg's hair for 15 years, came out to the house and undid it. Peg is now buzzed, and we're not talking about cocktails.

Trish thought that with some really big hoop earrings and a black dress Peg could come across as the editor of a Euro fashion magazine or a New York film critic. If she doesn't want to go that route, she does have a cute wig.

She feels a lot better today. The key seems to be staying hydrated, so she's tracking her liquid intake-- miso soup, bouillon, juice, water. She's got an appointment to get tapped again Monday morning (paracentesis to remove abdominal fluid), so we're going to make sure her tank is topped off all weekend.

Thursday, July 30, 2009

2 liters out; 2 days later, 2 liters back in

Last night Peg was running on all eight cylinders and we were able to make a stir-fry dinner together for the first time in six weeks. Today... not so much.

This morning Peg awoke to really bad chills and a slight fever. It took an hour just to get her to stop shaking. She had an existing appointment at 10:30 for a blood analysis at Dr. B's, and they determined she was dehydrated and put her on a two liter IV drip.

What happened was that her fluid intake couldn't keep up with the amount drawn from her abdomen the day before yesterday.

We used the wheelchair I bought a month ago for the first time to get her from the car, across the parking lot and down a long hallway to the office. But she was able to walk all the way back three hours later. Right now (5pm) she's thoroughly poohed. Lotta stuff to go through today.

By the way, it was Peg's idea to have the upside down liter bottles on this entry. We both had a much-needed laugh at the thought.

Many of you have wondered how Zoë's doing. She's staying busy, which we really encourage. Peg's sister Jeanette took her out to see a movie yesterday, some dear friends took her out kayaking on Lake Natoma today, another dear friend is taking her ice skating tomorrow afternoon. In between social engagements she piles through library books; we get 8 at a time or she quickly runs out of stuff to read. In three weeks or so she starts high school (!) which she's really looking forward to. Her nature is basically cheerful, and she's not a complainer, but I can tell she's restless sometimes and wishes we could play more often than we have lately.

When Peg feels good, she loves playing card games or snuggling with Zoë. She looks forward to those days, and tries to make the most of the other days. As those of you who know her well, Zoë is very considerate and kind. That helps all of us.

Tuesday, July 28, 2009

Tappin' the Peg keg


Sometime soon the chemo will start knocking back the amount of fluid being generated in Peg's abdomen. For the short term, she's been filling back up. Today she got some relief, 2.6 liters worth-- my estimate was just .2 liters off (Reminder to self, start a betting pool).

Her energy has been picking up, but she's really still just good for short spurts of activity. Even reading or watching TV for extended periods is enough to send her back to the sofa. Peg's a big fan of her iPod and the Radio Shack iPod speaker thingy it plugs into. If you want to do something for Peg, a great thing would be to burn a CD of something you think she'd like and drop it by the house. Spoken word stuff welcome as well.

Tomorrow is wig shopping day with Zoë, Peg's sister and two dear friends. For some reason she's resistant to my suggestions for either a mullet or a huge, Angela Davis afro. With a pick.
Sooooo tempted to Photoshop that one up for your amusement... but I'd like to stay married, so that's not gonna happen, cap'n.

Friday, July 24, 2009

First time harvesting the garden

She felt well enough to harvest some veggies and has been up most of the day, reading and being able to sit up for extended periods for the first time in weeks. Gleefully whomped down the yummy mashed taters and gravy our friend Traci dropped off.

Hope you enjoy this walking tour of the garden, which I recorded tonight just before sunset:


Thursday, July 23, 2009

Good news today

Dr. B. feels like Peg got a full dose of chemo last week and doesn't need to do the next round until a week from next Wednesday.  We were expecting her to be hospitalized overnight-- had her bag packed-- but she's having lunch here at the house as I write this.

This is the part of the treatment cycle where she'll feel better over the next few days and put some weight back on.  Dr. B. recommended mashed potatoes with butter and sour cream.  I concur with the doctor and look forward to whippin' 'em up from scratch... I think the last time we had mashed taters here was about a year ago.

Another bit of good news is that for the next round of chemo, the plan is for her to be treated in the outpatient clinic on a four-hour IV drip.  So potentially, no hospitalization for the next few weeks. Yay!

Tuesday, July 21, 2009

Peg was out in the garden today

Peg spent about 20 minutes with Zoë collecting veggies and dead-heading flowers.  She tends to push the envelope, which will help in her recovery, but leaves her a little short of breath in the meantime.  I have to remind her she doesn't need to do everything, by herself, all at once.  She's skinnier but entirely full of p**s and vinegar. 

Zoë and I prod her into eating every two hours, because she has a diminished appetite and a need to bulk up.  Peg's even requested something we all agreed was as dangerous as Plutonium in our house and agreed to banish a few months ago-- Trader Joe's Frozen Macaroni & Cheese.  How many calories per serving?  Don't ask.  Seriously.  Peg needs the protein, and I'm willing to latch on to a convenient excuse to indulge in the penultimate Mac n' Cheese Experience.  "Yeah, Peg, I'm whompin' this down... for you. Yeah, that's the ticket..."

It was great to see her outside today in the waning afternoon sun.  What a radically different experience than being hermetically sealed inside an oncology wing of a hospital, 400 feet inside a winding air conditioned corridor, ten miles and 400 carpeted feet from the rich earthiness of the garden we've created as a family.

Sunday, July 19, 2009

Peg's home, for now

We busted her out of The Joint at 5pm with Dr. B's blessing.  She's tired, but the color is back in her cheeks.  She was able to get another paracentesis at 2:30pm-- 3.1 liters this time.

She's not experiencing any nausea, but has heavy-duty prescription anti-nausea pills on hand if she needs them.  She'll rest at home until Thursday morning, when we'll head back out to Roseville for a consultation with Dr. B to determine if she'll do the abdominal port or the 24-hour drip.  So she could be home again Thursday afternoon, but at the latest Friday midday.

Then she's here for 12 days before being hospitalized again for the next round.  This will be the rhythm of our lives for the next four or five months: Peg in for 4 days, out for 3, in for 1, out for twelve.  

Saturday, July 18, 2009

Today's our 22nd wedding anniversary






Peg and I were joking this morning by phone about our "romantic getaway," visiting in a hospital. There will be time enough for us to celebrate properly.  But on this day it's good to remember that Peg is on her way to recovery, our marriage is strong, and we have a beautiful daughter and cherished friends and family.  

I thought you'd enjoy seeing some of our wedding photos.  We got married in a fever, hotter than a pepper sprout (no, sorry, that's a line from an old Johnny Cash song).  We got married in the outdoor courtyard of a little French restaurant in Denver.  Peg's friend Gail's husband was a Methodist minister, so we asked him to perform the ceremony, although neither of us are Methodists.

Our wedding cake was a pyramid.  I fabricated the bottom layer out of foam core, and the support shelves from Plexiglas.  The woman who baked the cake estimated that the bottom layer alone would have fed 200 guests, and we only had 110, so she frosted what was essentially an upside down box.  That's Margie, Peggy's maid of honor, on the right. 

We took the photo of our wedding rings a few days after the ceremony, hiking at 11,000 feet in Peg's beloved Rocky Mountains.  I think it says a lot about our new life together.  Hold hands. Aim high.  And breathe.

Friday, July 17, 2009

Day 3 (the great escape)

By the time Security caught up with her, she was halfway across the parking lot, sprinting behind her IV cart, hospital gown flapping in the wind...

Just kidding.  Too hot for that anyway (93 degrees at 8pm).  But she's got a lot of energy.  Zoë and I motored around the hospital hallways with her tonight.  She's tethered to an IV stand, but it doesn't slow her down a whole lot.  She slings it into the bathroom, shoved it aside to retrieve a dropped pen, and is adept at maneuvering it around the tight space between her bed, the wheeled table-thingy that swings over the bed, and the sofa-bed against the wall.

My moment of Zen: when we arrived, Peg was sitting in the chair, eating dinner, with the IV cart coincidentally parked in front of her as if she were watching a TV show instead of a glowing digital readout.

I asked if she'd watched any TV (the only show we watch at home is The Daily Show with Jon Stewart, about twice a week).  She said she tried out the remote and got stuck on a weird hospital channel with nonstop video of a fish tank with horribly bland "uplifting" music, which she imagined must be one of the punishments inflicted in hell. Have you ever seen Kenny G and Satan in the same room?  Think about it.

Dr. "B," her oncologist, is on call this weekend, so if Peg needs anything, her own doc will be there.  Big fan of Dr. Bobolis.

Tomorrow and Sunday Zoë will be in Woodland (about an hour from here) at Swim League Championships.  I will be catching up on three weeks of postponed client projects.  And our sweet Peggy will be mentally plotting her escape from the Joint.  She'll be home a week from today.